OT: Roo's Miracle...A TPB's Community Thread Of Unity and Support

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  • CanadianBoltFan
    Registered Charger Fan
    • Jul 2022
    • 10931
    • White Rock, BC Canada
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    #1621
    Wishing you, your Dad and your family the best Fleet

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    • FtheTurds
      Registered Charger Fan
      • Nov 2023
      • 165
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      #1622
      My prayers are coming your way!!
      Fan Since 1966, first game

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      • Ghost of Quacksaw
        Beef Before Gazelles
        • May 2021
        • 5012
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        #1623
        Joe is coming home from the hospital today.

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        • Fleet 1
          TPB Founder
          • Jun 2013
          • 3477
          • Kauai
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          #1624
          This was an update on Gianna in November of last year.

          It is impossible to find the words to describe the pain Jeff and I feel as we enter this phase with Gianna. It is a trauma beyond the deepest darkest pain that will be with us for the rest of our lives. I cope by keeping it in a box. I underplay the severity. I lie to myself. It’s how I make it through each day. Yet we know it also flows through Eric, Troy and Alexa. The grief we watch them process is exponential pain. It was Troy’s 14th birthday last week. We celebrated by going out for dinner - which was a major outing for us. I was standing outside the car, watching Jeff help Gianna from the passenger seat of the car she used to drive, into her wheelchair. My vibrant child, the one our family has orbited around for nearly her whole life - fights still for her life as this cancer and its treatments continue to ravage her brain. I feel so much anger. I know it’s an expected part of grief but I also want to push past it and revel in the joy she has given us for 17 years. It’s so unfair. Why Gianna? We are home, on hospice care. Even though we understand logically this next phase, the emotions of it are overwhelming. Every headache, every pain, every little thing. It is a freefall of terror - absolute terror of what the future looks like for our family. The terror of this experience. I still pray for a miracle, but my ask is angry. I am on edge in every moment. I pray for peace in my heart, to find gratitude in my anger, and most importantly, strength to support my family through this horrific nightmare. Thank you for keeping Gianna in your heart - please continue to come visit - hold her hand - tell her stories - make her laugh - share memories - tell her you love her and how much she means to you. The outpouring of love in the notes to her that we’ve read from her friends has been incredible. She has touched and inspired so many with her love - stories of things I had no idea that she had done that were so kind and giving. She is so special. She is SO LOVED.
          And most of us expected the next update to be a total downer. But her mother just posted this 30 minutes ago.

          So many times, mostly while lying in bed in the middle of the night, I have half written, in my head, a complete fabrication of an update to share on Gianna. They were aspirational, telling a story of a phenomenal recovery, describing details of miraculous progress that left her medical team in disbelief. I’m always trying to manifest a miracle. I would then often fall into a dream where I was fighting - always physically - with someone - often much larger, more powerful person or beast who was unidentifiable or faceless. Have you ever had a dream where you had to fight or flight? One that you remember, vividly, and it stays with you a bit after you wake? Did you fight or did you flee? I’ve had those dreams every now and then throughout my life but from what I recall I’ve mostly fled or escaped or somehow created safety for myself. Over the past months these dreams of fighting have been quite frequent and intense. However, the difference now is that I don’t ever turn away. I don’t hide. I stop, I face and I fight. Sometimes with total rage. I usually wake exhausted but without knowing if I was victorious. Dreams in some cultures hold significant meaning. I don’t think it’s hard to diagnose what I have going on in my dreams given what I currently hold in my life. But last night was different dream. There was tossing and turning and thinking and anticipating and scenario planning. But there was not a fight. There was peace. In fact, I think I slightly exhaled for the first time in many months.

          Gianna was discharged from hospice yesterday. Let me write that once more. GIANNA WAS DISCHARGED FROM HOSPICE.

          To properly tell this story, we have to turn back the clock. November and December feel like a horrific blur. Gianna, it seemed, was not doing well. We were told perhaps 5-6 days. Let that sink in a minute. Your child, a person you love more than life itself, might be departing - leaving you forever. For those who know me - you understand that I can compartmentalize better than what I would say 90% of all people. I did with that horrifying statement what I do best - threw it in a box and talked about it as if I was discussing someone’s 18-year-old cat. I didn’t process it. I disassociated. I coped. I just kept going. Our whole family just kept going. So did Gianna - right past the 5 days. Then we started to see some interesting progress. We removed her oxygen. We refused all hospice meds (don’t get me started). She was awake a little more (she was sleeping most of the day and night). Her right arm started to work. Her right leg moved. HER APHASIA RESOLVED. (Which was insane - we could actually communicate with her!!). Last week, she began to walk with a walker. She’s balancing while standing on her own. She’s eating ON HER OWN. Gianna has never flunked out of anything in her life - but she has successfully flunked out of hospice! I suppose there is a first time for everything - and we celebrate this one wholeheartedly!

          Our hospice nurse meets with Gianna’s medical team regularly. Each time our nurse would come she was baffled by Gianna’s progress - as she was getting better with each visit. She took photos and videos and sent them to Gianna’s medical team. The bottom line is there is no medical explanation for how or why this is happening. We 100% believe we are witnessing a miracle from God. We don’t know what He has planned for our Gianna, but for today, the plan is for her to continue to live, to grow, and to fight. We understand that Gianna’s mid-December MRI showed progression, perhaps, of the tumor. But perhaps it was read incorrectly. Her recovery is not congruent with tumor progression.
          I am also so proud to share that Gianna was accepted to TCU and to Baylor - the only 2 colleges she applied to - AND - has already received her high school diploma! She had enough credits to officially graduate! (I’m now happy that Gianna never listened to me about making her academic schedule a tad less rigorous. Who needs to take Spanish AND Latin???). She WILL GO TO TCU. They are ready for her and have been incredible supporters together with her high school. I could not ask for a more caring, supportive, loving team for Gianna. It’s beyond what I could ever hope for…
          We are not out of the woods by any stretch of the imagination. The rollercoaster of emotion I’m certain will ignite many more dreams of fighting - but we are starting off 2026 with a big fat tally mark in the W column. Full stop. We have UCSF on Feb 17.

          To Gianna’s warrior army: please keep praying, keep sending the positive thoughts and intentions. Continue visiting, including her…. We are witnesses to a miracle today. Our specific prayer is for Gianna to continue on a path of healing and wellness, to not be frustrated with what she sees as slow progress, and mostly, that her left eye heals and effectively works together with her right eye to resolve double vision issues, eliminating the need to wear a patch. Her prayer is that her face returns to ‘normal’ - Gianna is still a teenager - and she hates not looking like herself. She absolutely hates it. If you have time for an extra positive thought or prayer, I know she’d appreciate it.
          Continued gratitude for all the support for our family and help to Jeff when I’m traveling for work.

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          • La Costa Boy
            I miss the Murph!!!
            • Sep 2018
            • 3720
            • JoJa
            • Bloviator of hot air and rhetoric.
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            #1625
            I still think of Roo all of the time. I'll be chewing on something Chargers and he pops in my head, usually dispensing his calming witty wisdom. I think he would smile knowing that he is not forgotten here!!! CHEERS Roo!!!!

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            • Craig440
              Registered Charger Fan
              • Apr 2019
              • 651
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              #1626
              Originally posted by La Costa Boy View Post
              I still think of Roo all of the time. I'll be chewing on something Chargers and he pops in my head, usually dispensing his calming witty wisdom. I think he would smile knowing that he is not forgotten here!!! CHEERS Roo!!!!
              Good post. I came here because I was thinking about him also. He wanted me to tell a story now and then because we both started in 1961,

              I forget most of the stories but one popped in my brain today. Back in the early 60"s when my mom was the unofficial Charger Realtor, we met lots of players and wives and even a few little kids. Ron Nery number 80, DE, Bought a house across the street. He had "gatherings" with the other DL at his house. Earl Faison, Ernie Ladd, and some linebackers I don't remember the names. He took me to the practices.

              I'm getting off track. I wanted to tell about how the players talked about the Raider players. They said they were just dirty players. When in a pile they would spit on you or grab your mustache. Stuff like that. I heard it firsthand at about 8-9 years old.

              We lived in the Granite Hills area, east El Cajon. Players bought houses there. There and Mount Helix.

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              • wu-dai clan
                Registered Charger Fan
                • May 2017
                • 18152
                • Send PM

                #1627
                Originally posted by Craig440 View Post

                Good post. I came here because I was thinking about him also. He wanted me to tell a story now and then because we both started in 1961,

                I forget most of the stories but one popped in my brain today. Back in the early 60"s when my mom was the unofficial Charger Realtor, we met lots of players and wives and even a few little kids. Ron Nery number 80, DE, Bought a house across the street. He had "gatherings" with the other DL at his house. Earl Faison, Ernie Ladd, and some linebackers I don't remember the names. He took me to the practices.

                I'm getting off track. I wanted to tell about how the players talked about the Raider players. They said they were just dirty players. When in a pile they would spit on you or grab your mustache. Stuff like that. I heard it firsthand at about 8-9 years old.

                We lived in the Granite Hills area, east El Cajon. Players bought houses there. There and Mount Helix.
                Great stuff !!

                Oooh. My best prep baseball game was against the Granite Hills Eagles.
                Two triples in three at bats.

                RIP 'Roo.
                Quiet strength.
                In our hearts.
                HowellER KlareTE FarmerOG M'baDT TollisonC 4.3.26

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                • Whydachargers?
                  Registered Charger Fan
                  • Aug 2023
                  • 1565
                  • Send PM

                  #1628
                  Originally posted by Fleet 1 View Post
                  This was an update on Gianna in November of last year.



                  And most of us expected the next update to be a total downer. But her mother just posted this 30 minutes ago.
                  WOW! Such great news!

                  Comment

                  • Fleet 1
                    TPB Founder
                    • Jun 2013
                    • 3477
                    • Kauai
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                    #1629
                    Originally posted by Whydachargers? View Post

                    WOW! Such great news!
                    Thanks bro. Have to believe in miracles.

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                    • Fleet 1
                      TPB Founder
                      • Jun 2013
                      • 3477
                      • Kauai
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                      #1630
                      I have a friend Nate who has a sick wife. Friend of mine from another forum. She is Jaundice. Liver issues.

                      Please pray for Chelsea.

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                      • Whydachargers?
                        Registered Charger Fan
                        • Aug 2023
                        • 1565
                        • Send PM

                        #1631
                        Originally posted by Fleet 1 View Post

                        Thanks bro. Have to believe in miracles.
                        That is a great one.

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                        • Craig440
                          Registered Charger Fan
                          • Apr 2019
                          • 651
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                          #1632
                          Originally posted by Fleet 1 View Post
                          I have a friend Nate who has a sick wife. Friend of mine from another forum. She is Jaundice. Liver issues.

                          Please pray for Chelsea.
                          I just found out about this. It's quite a shock she is so young. I'm praying for her, him, and their son. Devastating news. Pray for Chelsea please.
                          This is not fair.

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